Quality of life in children with food allergy study
Mapping food allergy specific quality of list instruments to generic paediatric multi-attribute utility instruments to understand economic burden of food allergy
The Children’s Hospital at Westmead
Sydney Children’s Hospital Network
funded in part by Investigator Initiated Study (IIS) funding to Monash University via DBV Technologies
Quality of Life
To understand how food allergy affects quality of life, and how to better understand and measure the economic burden of changes in quality of life for food allergic children and their parents and carers.
Quality of Life (QoL) is an important part of evaluating the impact of diseases, treatments and other interventions on the health system. So far, we do not have the tools we need to be able to compare information about the quality of life in children with food allergy with existing information from other areas of health. By asking parents to answer questions about their child’s food allergy and to complete three existing quality of life questionnaires, this study will allow us to directly compare information about quality of life in children with food allergy with information gathered from other areas, which will help us to better understand how to approach the prevention, management and treatment of food allergy. In this study, parents or carers will be asked a few simple questions regarding their child’s food allergy and then asked to complete three separately validated quality of life questionnaires on behalf of their child: the FAQLQ-PF (30 questions), the CHU9D (9 questions) and the AQoL-6D (6 questions).
Parents or carers of children aged 1-17 years with food allergy.
Recruitment completed October 2019. Data collection completed October 2019.
Study contact: [email protected]
Study link on A&AA website: https://allergyfacts.org.au/news-alerts/latest-news/food-allergy-quality-of-life-study-4-october-2019